Friday, December 28, 2007

My miracle child

Just look at that happy face.

Miracles do happen here and will continue to happen.

I am full of emotion today. I am tired of people coming into my house and telling me things I don't want to hear or need to hear. We have worked so hard. In August of this year Taylor had lost almost all her words. Pretty much silence. In 4 months she is requesting her favorite foods with words, saying hi/bye/night night appropriately, doing puzzles, building with blocks, swinging, sliding, climbing on the balance beam, laughing, tolerating playdoh for a minute or so, responding much better to (quiet) strangers entering her safe house, playing Mr. Potato Head, crafting with foam stickers, etc. Not to mention she knows most of her ABCs, numbers 1-10, colors, approximately 30 animals and has every book in this house memorized. I can give her 2 or 3 puzzles at once, dump out all the pieces and she will sort through and do them all. She is also acquiring labels naturally- without being formally taught each one through discrete trial. In formal terms this is called generalization and she is very capable of doing this. We didn't have to teach generalization which means she is slowly moving to learning the way "typical" kids learn. Socialization with other children is still one of our toughest obstacles but she is still very young. She can't stand loud kids. Well, I'm not very good at that either so we have something in common.

So these therapists come into my home and tell me Taylor's delays will always be with her. WHAT?!!! She is so on-target if not ahead academically. Yes, we have social things and communication to work on but come on people. They talk of group homes, etc. They have NO idea where we started and what road we have taken. I try to explain and they look at me like I'm talking a foreign language. They don't believe me. I'm in the process of making them a movie of what Taylor was doing 4 months ago. I feel compelled to prove it to them. I tell them the puzzle completion started with me doing one piece (my hand over hers) and then rewarding her with an M&M after each piece. Yes, it was hard at first. Yes, she screamed, hit me, and threw herself around like a wild animal. BUT, guess what?! Her puzzles are now one of her very favorite things. And it was really never about the puzzles. It was all about getting her to focus long enough to complete something - focus long enough to learn. Some days I think we have a little ADHD mixed in all this but that's okay too. The typical therapists have no idea how ABA works but seem to not want to learn. The key is ABA needs to be done properly in order to work. There were days we did formal sitdown sessions on and off ALL DAY LONG. That's what the professionals mean when they say intense 1:1 therapy. They don't mean do a couple things and then let her stim for 15 minutes. We do no stimming around here. It is ALL redirected. ALL OF IT. Yes, I'm tired but my kid needs saved. Who the hell else is going to do it?

Basically it's going to work like this. With direction from our ABA therapist Taylor WILL be saved. ABA is what gave her a strong foundation to learn. If any person involved in her life doesn't want to jump on board well then back off----my little girl and I will run you over.

Peace.

6 comments:

Sue McGettigan said...

You keep going Michelle - you're working miracles, keep proving those other therapists wrong! I'm delighted to hear Taylor is doing so well - happy new year to all of you.

Meredith said...

There is a reason kids don't come with an instruction book! All kids are different and they all develop and learn differently. Mama knows best. Sounds to me like you have made huge strides in Taylor's progress. Yay for you! Yay for Taylor! You do what's best for you! You are doing an incredible job. Happy new year!

Anonymous said...

Group homes? What child are they looking at? Good Lord, months before Taylor received her diagnosis a person could tell that she wasn't destined for a group home. And all the hard work that you all have been doing has made obvious changes in her. Group homes. I think that maybe they need to remap their own brains--can't they see the child in front of their eyes? Keep pushing, Michelle. You know that you're doing the right thing.

michelle ward said...

Michelle - I'm loving all the good news of Taylor's progress. And I'm loving the passion and conviction in your voice. Good things come to those who think good things. I'm so happy for you!

Loudlife said...

Gah! Who are these people??? Do they have degrees??? I'm so happy you know enough not to listen to them. Think of the poor families who don't.

Just checking on you. Since we deal with many of the same things I am interested in your progress. It sounds fantastic! Congratulations!

Our girl is also doing well. Her head therapist has even suggested that she may benefit from a typical preschool rather than the "special" class next school year. We can hardly believe the progress ourselves sometimes. Since we struggle with the peer socialization issues, too, that would be the main obstacle to overcome before she could switch classes. Last week she spontaneously greeted one of her classmates for the first time ever. I practically had a party right there on the sidewalk!

I know you see it as a matter of necessity, but you are heroic.

Keep the faith, sister,
Laurie

Kerilou said...

I am so pleased to read this, Michelle..I can sense the strength and presistance in your voice. You are Taylor's champion!! Keri